Personal Advocacy

Members of the Rare and Undiagnosed Disease communities may desire to contact their Utah State Representative, Utah State Senator, United States Representative, or United States Senators. You may influence your legislator’s vote on key policies that may influence access or barriers to care for you or your child. The following links provide contact information for these legislators.

The following tips may be used to write an effective letter or email:

 

• Be Brief: Keep your letter or email to one page or less. Be specific with your subject line: Make it clear and concise, indicating the topic of your letter/email. For example, “Support for [Bill Number] on [Issue]” or “Concerns about [Specific Issue]”. Clearly state your name and that you are a constituent (a resident of their district).

• Be Specific: Avoid generalities and provide concrete details. Briefly explain the purpose of your letter/email in a few sentences. Clearly state your position on the issue or bill, and include the bill number if applicable. Provide specific details and examples to support your viewpoint while focusing on the local impact and why you want the representative to take a specific action. Recap your main points and thank the representative for their time and consideration.

• Be Respectful: Maintain a polite and informative tone, even when disagreeing with the representative’s position. Use a formal salutation, such as “Dear Representative [Last Name]. “Use a respectful closing, such as “Sincerely” or “Respectfully,” followed by your name and contact information.

• Avoid Attachments: If you need to share additional information, include it in the body of the letter/email or provide a link.

• Don’t Copy or “Cc” Other Representatives: Address your letter/email only to the relevant representative.

• Follow Up: If you don’t receive a response within a reasonable timeframe, you may want to follow up with a phone call to their office