Justine is a patient advocate and educator for complex and rare medical conditions; she and her family are impacted by multiple rare disorders. She serves as a grassroots and national community leader and works to ensure accuracy within the online groups she runs to assist her communities’ medical literacy and effective navigation of healthcare systems. Her experience spans from legislative advocacy to clinical work and health promotion, including helping to design population studies for disease-specific community and nonprofit groups.

Justine is committed to helping herself and others living with rare and complex conditions gain access to quality care and treatment. She was very fortunate to have a career that prepared her to thrive as a complex patient, and she works hard to share knowledge with her community.