Kira is a dedicated patient and political advocate specializing in rare disorders, driven by her own journey navigating healthcare systems as a rare disease patient. Her unique experience combined with an academic background in anthropology, integrative human biology, and an M.S. degree in healthcare administration provide her with a comprehensive understanding of the complex social and medical issues faced by rare disease patients. She is devoted to innovation and the removal of systemic barriers to the diagnosis and treatment of rare disorders.

She is a rare patient and rare advocate looking for ways to help her communities.