Sally Jo is a registered nurse by training but developed a passion for research. She has managed the Utah Data Coordinating Center for the past 20 years and has provided oversight for clinical research and clinical trials that impact patient care and health. She also oversees research activities for several rare and uncommon disease networks with researchers from around the country. She has expertise in data collection and analysis, grant development and clinical trial execution.

She thinks research and data are key areas to help discovery in rare disease areas and would like to contribute her expertise where needed.