Council Member Narrative by Sally Jo Zuspan

Much of my career has focused on building the systems that help important research questions become meaningful evidence—and, ultimately, better care. I began as a pediatric trauma and emergency nurse and worked to improve pediatric emergency care in various pediatric hospitals. As a senior leader at the University of Utah Data Coordinating Center, our work […]

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Utah Parent Center: Serving Utah’s Disability Community

For a family navigating a rare genetic condition, the journey often feels lonely. There are medical appointments, therapies, school meetings, unfamiliar systems, and questions about what the future will hold. Even when families are surrounded by knowledgeable professionals, there is something uniquely powerful about connecting with someone who has been there, too. That connection is […]

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