On July 18, 2026, members of the Utah Rare Disease Advisory Council (RDAC) were honored to participate in Canyon Rim Cares, an annual day of service that brought together nonprofit organizations, volunteers, community leaders, and residents who share a commitment to strengthening our communities through service and connection.
Throughout the event, RDAC members had the opportunity to meet with families, caregivers, healthcare professionals, and community members to share information about the Council’s mission and the important work being done to improve the lives of individuals living with rare diseases across Utah. We distributed our policy guide and engaged in meaningful conversations about the challenges and opportunities facing the rare disease community.
Community outreach events like Canyon Rim Cares play an important role in increasing awareness of rare diseases and ensuring that families know they are not alone. Every conversation helps build understanding, foster collaboration, and connect individuals with organizations and services that can make a meaningful difference in their lives.
The Utah RDAC remains committed to expanding awareness, strengthening partnerships, and amplifying the voices of Utah’s rare disease community. We are grateful for the opportunity to participate in Canyon Rim Cares. Thank you to The Millcreek Miracle for creating such a welcoming and impactful event, and thank you to the many volunteers and attendees who took the time to visit our table, ask questions, and learn more about the work of the Utah RDAC.
Together, we are building a more informed, connected, and supportive future for the thousands of Utahns living with rare diseases and the families who care for them.